ausEE Virtual Show
Welcome to National EOS Awareness Week!
- August 21 2021
Eosinophilic Oesophagitis: Optimal treatment in 2021 and future options
Dr Hamish Philpott has prepared a presentation outlining why we treat EoE, the current treatments for EoE, demonstrating how effective they are, discussed safety concerns and briefly some treatment options that may become available in the future.
This presentation is suitable for doctors and other health professionals, as well as patients and their family. He has provided some explanation for medical terms and talked around some of the trial slides to make it generally relatable.
Cooking with Substitutes
Join Sarah Gray & Courtney Roulston as they cook along with substitutes. Courtney has created a beautiful Coles Wellness Road Brown Rice Chia Noodle Lamb Lemongrass Stir Fry as Sarah cooks alongside her substituting ingredients for Bella’s allergies.
Healthcare use, burden of disease and satisfaction with care in paediatric EoE
Do you ever wonder what experiences other families who are living with EoE have when navigating their way through the healthcare system in Australia? How much is EoE impacting the lives of children with EoE and their parents/carers? This session is presenting the findings of a survey completed by 181 parents and carers of children with EoE in Australia. This study provides the first known research into complementary medicine use, treatment burden, and impact on health-related quality of life for children with EoE and their carers in Australia.
Feeding difficulties in Eosinophilic Gastrointestinal Disorders: What does Speech Pathology have to do with it
Feeding and swallowing difficulties are more common in children with Eosinophilic Gastrointestinal Disorders (EGIDs). Any problems with the gastrointestinal tract can contribute to problems with eating, drinking and the enjoyment of mealtimes. Managing feeding and swallowing difficulties requires a multidisciplinary team, with speech pathologists playing a central role in the assessment, diagnosis and treatment of feeding disorders. We will discuss the relationship between EGIDs and feeding difficulties, and how feed aversions develop in children with gastrointestinal conditions. Management principles, referral pathways and further resources will also be shared.
Dietary Management of EOE
In this session Vicki McWilliam, paediatric allergy dietitian will explain the dietary approach to identifying food triggers of EoE
Cook Along with Lisa Munro - Top 8 Free Chocolate Cake
Watch as Lisa from Happy Tummies uses her own versatile recipe to make chocolate cake. It’s free from gluten, wheat, dairy, eggs, soy, tree nuts and peanuts.
Eosinophilic gut disorders and misdiagnosis: we may be missing EGIDs!
Eosinophilic GI disorders (EGIDs) are diagnosed when increased eosinophils are identified in the gastrointestinal tract in patients with chronic otherwise unexplained gut symptoms. EGIDs are considered to be rare. The symptoms of patients with EGIDs are very similar to the symptoms reported by patients with functional gut disorders such as the irritable bowel syndrome or functional dyspepsia. We have new data that suggest EGIDs are often misdiagnosed as a functional gut disorder. EGIDs may be underdiagnosed because tissues biopsies (or not enough biopsies) are obtained, and pathologists do not routinely look for and count the number of eosinophils present.
Story Time with Eddie Woo
This year is the 10-year anniversary of Meet Arabella, a book written by ausEE president Sarah Gray and illustrated by Peter Carnavas. It tells the story of one girl’s journey to discovering, understanding, and learning to live with her eosinophilic disorder. In this video Eddie reads the story, shares a little about his own family’s experience, and explains what this book means to him.
Role of the allergist in EOE.
Eosinophilic oesophagitis (EoE) is a complicated condition that is best managed by a team which can include a gastroenterologist, paediatrician, dietitian and an allergist. In this video, Professor Pete Smith talks about the role of an allergist and what they can do in looking after somebody with eosinophilic oesophagitis both at the clinical level, what’s happening at the research level including epidemiologically and how fantastic things can happen when we all work together.
Cook Along with Marion Stock - Savoury Bread Cases.
Marion Stock is the proud mother of three grown children and grandmother to six grandchildren. Sarah Gray, President and Founder of ausEE Inc. is her second daughter and Bella Gray is her eldest grandchild. Marion is very family orientated and cooking is one of her passions. Since Bella’s diagnosis of EoE and anaphylaxis risk allergies, Marion has adapted and created many recipes to cater to her dietary needs. Marion has been one of the test cooks for ausEE’s Allergy Friendly Recipe Book which is due to be published by the end of the year.
Epidemiology of EGIDs.
This talk reviews the epidemiology of eosinophilic gastrointestinal diseases (EGIDs), including characterization of the number of cases and trends in the number of cases, description of the natural history of disease, and investigation of risk factors. Next, it reviews the available data on the epidemiology of the non-EoE EGIDs. Then, it reviews the data on the epidemiology of EoE, which is more extensive than for the non-EoE EGIDs.
Been diagnosed with eosinophilic oesophagitis? Here's what you need to know.
Join Dr Santosh Sanagapalli a Gastroenterologist and director of the Centre for Swallowing & Oesophageal Disorders, St Vincent’s Hospital campus, Sydney as he shares a Introduction to eosinophilic oesophagitis and answers to commonly asked questions about the condition.
Past, Present and Future of ausEE, Australia’s peak charity for eosinophilic disorders.
Join ausEE President and Founder, Sarah Gray for the launch of the ausEE Virtual Show during National EOS Awareness Week and on Top 8 Challenge day. Sarah will share the story behind ausEE, her personal parent/patient journey, who ausEE is, what they do and where they are headed on their mission to improve the lives of those affected by eosinophilic disorders.
Cook Along with Kathleen Hedger - Chicken, Bacon & Mushroom Baked Risotto.
Watch as Chef and ausEE member Kathleen Hedger cooks one of her family favourite meals, an allergy friendly Chicken, Bacon and Mushroom Baked Risotto which is free from top 8 common allergens (milk, egg, soy, wheat, peanut, tree nut, shellfish and fish).
